Epilepsy Action Youth Advisory Panel
About organisation / project
Epilepsy Action exisits to improve the lives of people living with epilepsy. Over 600,000 people in the UK have epilepsy, which is a serious neurological condition.
Epilepsy Action is a community of people committed to a better life for everyone affected by epilepsy.
We want high quality, accessible epilepsy healthcare services, so that people with epilepsy have the support they need to manage their condition.
We want wider awareness and understanding of epilepsy, so that people living with the condition are treated with fairness and respect.
Details Hide[-]
Epilepsy Action are dedicated to creating world without limits for people with epilepsy. We put people affected by epilepsy at the heart of everything we do, and we value their input in all our activities.
Young people’s voices are essential to shaping and supporting the future of Epilepsy Action. Too often, decisions regarding the wellbeing of young people are made without the input from those most affected. The Youth Panel ensures that young people have the opportunity to be heard, while providing feedback in shaping the services, campaigns, and projects that we work.
No one understands the challenges facing young people better than those experiencing it. If you have epilepsy and would like to be part of the change, we would like your insights and experiences at the heart of what we do. We need help to make our projects and campaigns more representative of young people by providing your opinions and coming up with new creative and innovative ideas.
Requirements:
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Age: 16-25 years old
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Affected by epilepsy (you live with epilepsy or are a carer for someone who is living with epilepsy)
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Attend quarterly online meetings
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Respond to messages through a volunteering portal
What you will be doing:
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Suggesting how to make Epilepsy Action’s work more relevant to young people
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Providing feedback on projects and campaigns
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Help create new ideas and approaches for future campaigns
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Representing young people at events or charity campaigns
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Raising awareness of the Epilepsy Action’s goals and campaigns
The skills you need:
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Confident giving feedback on documents or in meetings
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Able to use a laptop or smartphone to answer messages, read documents and join online meetings
What's in it for you:
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Represent the voices of young people with epilepsy in Epilepsy Action’s work and in projects that we support
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Meet other people affected by epilepsy
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Learn about and impact our work
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Gain experience while building and developing personal and professional skills
Our Youth Panel members carry out their roles around their daily lives. This role is very flexible and can be done whenever you are free.
Additional information Hide[-]
Required Role
Epilepsy Action Youth Advisory Panel
Key responsibilities
What you will be doing:
Suggesting how to make Epilepsy Action’s work more relevant to young people
Providing feedback on projects and campaigns
Help create new ideas and approaches for future campaigns
Representing young people at events or charity campaigns
Raising awareness of the Epilepsy Action’s goals and campaigns
Mandatory SkillsHide[-]
- Communication
- Confidence
- IT, Computers and Web Skills
- Office IT (Word, Excel etc)
- Positive attitude
- Reviewing and evaluation
Desirable Skills
- Communication
- IT, Computers and Web Skills
Skill to gain
- Communication
- Confidence
- Listening
- Networking
- Opportunity and Recognition
When can you do this role/Calendar
Minimum commitment level: Once a month
Start Date: 21-07-2025
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- The University of Bradford Students' Union is a unincorporated association registered with the charity commission, charity No. 1148622
